Hello, I’m Gary. It’s been a funny old year.
A magical mystery tour in search of a diagnosis for the seemingly disparate symptoms that had left me so incapacitated I have been unable to do a full day’s work since January.
In late October, the diagnosis came through – you’re ahead of me here, I can tell! The doctor confirming I had myalgic encephalomyelitis, or ME for short.
Crippling fatigue, pains, sweats, brain fog, muscle spasm and much more besides. It’s not something I’d wish on my worst enemy, but I am trying to make the very most of it to help others.
ME is a hidden illness. I often look absolutely fine. But that betrays the reality of how it feels to be me, and the many hours a day I am either in bed or laid on the settee, preferably quietly and alone.
There’s lots of great information about ME, CFS and fatigue online, but I couldn’t find a simple, friendly place that just told it as it is.
That’s why I set up Zonked Club. I want it to be a place where people can share stories and experiences. Over time I want to add lots of audio and video as I know reading articles can be incredibly tiring.
But as you’ve got this far, here’s a bit more reading for you! Before I launched Zonked Club and set up this blog I wrote two posts elsewhere – which I’ve now posted here – about my search to find out what’s wrong.
First, in July: Desperate for a diagnosis
Then in October: Despicable ME